We felt in the circumstances there was no reason to wait to give Pierce a name and blessing. We rented out the "family room" which is about as big as a small bedroom and smashed around 40 people in. People who have loved and prayed for this little one. There was not a dry eye in there as we sang families can be together forever, and listened to the beautiful blessing Pierce was given by his daddy. Likely the last blessing Phil will be able to give to our little boy.
The doctors have found that Pierce has 1 of 2 very rare nerve disorders. Disorders that will not ever allow him to breath on his own. Disorders that will not allow him to walk. Disorders that would effect all muscles in his little body. Right now it is largely affecting the muscles that help him breath. It breaks my heart to think my little baby who looks so perfect, has a little body that is failing him.
We want him to be a part of our family here on Earth so bad. For some reason that is just not going to be. I cant help by cry my eyes out when I think about it. I love him so much. More than I could ever imagine loving someone I have hardly been able to get to know. I want so bad to be able to get to know him. To see all of his milestones and to raise him HERE. We aren't sure how much time we have left, but I will enjoy every minute until then. We are blessed to have him for any time we can.
31 comments:
Lesh-
My heart is aching for you and your family. My prayers and thoughts are with you all the time. I am so glad you were able to have him blessed with your families there. I love you and I know families are eternal. What a perfect little spirit you were blessed with. May peace and strength be with you. What a beautiful baby. I am so sorry. Families CAN be together forver. Your in my heart and prayers.
xoxoxoxox
Love,
Angie
LOVE all the pictures! and love that little man.
Oh Alesha, my heart is broken for you and your family. I wish there was something I could do or say to help ease the pain you are going through. You are such an amazing person and I am so glad you have the knowledge of Eternal families. Please know that we think of you all often and pray for you daily! Love you!
Alesha, I am literally sobbing right now. You are such an amazing women and example to everyone around you. You are in my prayers and thoughts constantly.
Alesha,
I seriously have been looking at your blog everyday for an update. Everytime you posted I was like oh my heck I can totally relate, Faith went through that same exact thing. Then when you posted 21 days...I thought wow I thought 10 days was a lifetime, I cant relate with that. Now this....I cant even imagine. I dont even know what to say. You are so amazing and I dont even know what I would do or act or how to be a mom to your other children during this but you seem to manage it all. I know I am not someone that you are close to but please know that if you need anything at all, dont hesitate to ask. I have fallen in love with your little family and this little man. You will be in our hearts and prayers to help you get through this.
All our Love,
The Philpots
You are a remarkably strong person, my heart is aching so bad for you right now...many prayers for you and your family. You are amazing..
Pierce is very lucky to be born into your family. I truly believe that familes are forever. Lesh, you are one strong, amazing women. I am so so sorry for everything you are having to endure. Love ya, please know I'm here for you whenever you need it. Shar p.s. this pictures are priceless, he is so handsome!
Oh Lesh, I don't even know what to say. My heart just aches for you right now. You are such an incredibly strong person. I will be praying for you and your family. Please know I am here for you if you need anything at all.
He looks so precious in his little blessing outfit. I'm glad you were able to have all the family there for such a special occasion and that you have such amazing support. I'm sorry you've had to go through this, I pray for you to have peace and comfort through these hard times ahead. He is a lucky boy to have you as parents.
Lesh,
I am so sorry to hear of the struggles your sweet little one is dealing with. I know that you will see him again and that you know too! It's such a blessing to have the knowledge that we do and to know that he is so perfect that he only needs to be on this earth for a short time whether it's days, months or years. Please know that I am here for you if you want to ever talk. You are such a strong woman and an amazing mother. Loves and hugs.
Nol
The Olsen's.... My heart is broken! This is so sad. I don't know what to say, but I am so sorry you are going through this. I am thinking of you guys.
Really I don't even know what to say right now....except that I am so sorry that this is something that you and your family are dealing with. He is so sweet. I am so glad that you were able to have such an incredible blessing with family and the spirit. You are still in my prayers and thoughts.
He is such a beautiful little baby boy! That outfit and the picture of his little feet are adorable! Those little tiny shoes are so sweet! I am having a hard time understanding how a baby boy that looks so perfect could be so sick as well. Ryan and I are so heartbroken by this! We have prayed for that little boy and for you and Phil every day and we will continue to do so. I have been so inspired by your strength and by your faith. I too know that families are forever and you will get to know him and see those milestones someday. I hope you will have some special moments with him in the time you have left that you will treasure forever. Our thoughts and prayers are with you all!
Love,
Ryan and Becca
So, here I am sitting on the couch balling my eyes out. Then my hubs comes home from work, I read this post to him and HE'S got tears in his eyes.
I have born the pain of almost losing my child. I truly can't imagine what it's like to actually lose a child. Your little one must have great strength and courage, and I'm sure he's blessed the lives of everyone that has come in contact with him. I'm sending you hugs and warm thoughts, even thought I'm sure your cup runneth over. Thinking about you.
Alesha- it's a good thing I didn't read this while I was at work... I'm a crying mess! I want more than anything for him to be raised HERE too!... I want to teach him how to play pranks on his older brothers, to build impressive forts, and how to collect big bugs (a thing I have mastered over the past few weeks!). I just love Pierce so much!! We've been cheering him on from day one- wanting so badly for him to progress and come home... now we know he's going home and he will be the one cheering us on- I have no doubt about it. I LOVE you guys!...
Phil and Alesha, our heart goes out to you and our prayers are with you. We are so sorry things haven't turned out the way we all hoped they would. We love you guys, little Pierce is too perfect and pure to be here, but he is yours for eternity. Lots of love your way...
Alesha, I'm sitting here on a computer in a hotel lobby sobbing. I am so sorry. You and your family are in our prayers.
Words just can't express the heartache I feel for your little family. He is an angel, and we sure wish that things could have gone differently. We really admire your courage and faith, and hope for the best. We love you guys!
Alesha, as I sit here and read these posts, I just cry my eyes out. It is just heart wrenching. You and your family have been in my thoughts and prayers ALL the time. I know that families are together forever and that you will see your perfect/precious baby again! I love you Alesha, You have always been my older sister, someone that I have always looked up to! My heart and prayers go out to you and your sweet baby at this hard time.
Alesha,
I have been following your blog religiously but have been hesitant to comment because what you are going through is so personal, and I have been nervous to say the wrong thing.
You have been in my thoughts constantly, you are a courageous woman. when I read this last post, I couldn't pull myself together and I called my mom since Jed was at work. We talked about it for a little bit and she told me that she has always believed that babies that come and stay for just a short while, are spirits who are so valiant that they just need a short say here. What a truly special boy you have.
Your faith is so great and often I have come to your blog to draw strength from your perspective. How I wish I could wrap my arms around you and take away the pain you are experiencing.
I am so glad that you had the opportunity to have your husband give him a name and a blessing. You and your family will continue to be in my prayers.
He is so blessed to have been born in the covenant. You are amazing parents with amazing strength. We love you guys!
My heart is broken for your family. I can even comprehend the sadness and ache you are feeling. I am praying constantly for you and your family for strength and comfort. What a beautiful little baby he is. Love you guys. xoxo.
Sis reading this post and the comments...I am totally understanding the constant lump/sore throat thing...ouch! I really am amazed at the way you are so gracefully handling this tough situation. Not that I expect anything less. I watch your beautiful face as tears silently stream down and think in aw to myself..."Wow sis you are amazing"!
I know I already said it today, but I feel like the looser sister who lives far away and can't do my sisterly part, but I hope you know of our little families love for your little family and that we wish we could be there every second!!! (not that you want that but still)
Just thinking of baby "P" in his cute little orange outfit today makes me bawl because I just wanted to sneak him out of the hospital and take him to have a fun day with no tubes and no machines! He is so cute and precious, I can see why you can't get enough of him!
Love you guys tons!
Man life doesn't seem fair! What an amazing woman and family you are! It's amazing what life's trials bring! I know right now it seems like nothing good can come from this, but someday you will be stronger and blessed because of it! My heart breaks for you! I can't stop thinking about what you must be going through! Please let me know if you need anything or just someone to talk to! Love you!
We love you guys and are amazed at your strength and willingess to share this journey with us all. Lots of love and prayers to you and your family!
Alesha,
My heart is so full of heartache for you and your family. I want you to know as someone who knows a little of what you are going through that even though it is so hard, I know that you will make it through this. These weeks will be filled with bitter sweet memories and power that you may not experience ever again. I love you and I know without a doubt that there are angels by yours and Pierce's side every moment. I hope you know if you need anything ever that you are not alone in this. Much love,
Marissa
Aleesha,
I am so sorry. I don't understand why this has to happen to your sweet boy or your family. I am thinking of you and praying for you. I was listening to Carrie Underwood's song "Temporary Home" today and thinking of your little guy and just bawled. But I do know that we have a home to look forward to and your little boy will always be taken care of. I hope for the best for your family and you are in my prayers. Love you girl.
Sarah
Those pictures are darling. That is so great you guys were able to give him a blessing. Even though it may not have been a traditional blessing how neat it must have been to have the opportunity and have your family there to share that with you. I am so so sorry for the hurt you and your family are feeling. I love ya and I hope you know I am just an open back door away. Thinking of you guys.
Wanted you to know we are thinking about you and praying for peace and comfort. You are very special to us. Happy you are surrounded by such loving and positive friends and family.
Love,
The Zukas's
Alesha~
this is Alicia using Keri's login so that i could see your blog! don't know why i haven't been able to get on but i've been getting updates from everyone. Keri let me use her login so i could see...so here i am...sobbing..he is such a beautiful beautiful baby and all i can think at this point is what an amazing spirit you have been given that he only needed to be on earth for a few weeks to 'say he's been here'. That speaks volumes to the kind of people you and Phil are that he chose you as parents. Your family is in my prayers, i know you'll be together again and that he will be whole. Sending love your way...*cyber hugs*
I have read and re-read this post at least a dozen times. Tearing up each time and wanting to say something each time, but never able to find the words. I still don't have the right words I'm sure, but I wanted to let you know that I am thinking about and praying for your family.
I also wanted to let you know that after the immense pain and sadness, however long it may take, somehow hearts get mended and you totally realize the blessing you have waiting for you in heaven. Having an Angel in heaven is something very sacred and very special. I know my baby girl completed her mission here and is waiting for us.
If you ever need to talk please don't hesitate.
Love,
Ashley
Post a Comment