*Today I felt my milk letdown for the first time. I was snuggling my little baby and oh there it was. I forgot what that feeling was like. Since I do not have a baby to hear cry or want to eat, it’s just me and the pump...I wished for a minute I could just nurse him right then and there, tube in throat and all. Just to feel close to him, feel like he is my baby and not some little stranger we visit in the hospital.
*The tube in throat leads to the next letdown. Pierce was extubated Friday morning and made it until Monday night. After periods of apnea, some more severe than others, Pierce showed us he cannot maintain his own breathing. This is heart wrenching. You think "oh 4th try, he has to be able to do it" but it is not so. Monday the Doc had called us with the warning that intubation lie in the future. If he had one more severe episode they would put him back on.
Phil and I dropped the kiddos off with his family and arrived at the hospital about 8PM. We arrived to a familiar face, NNP Sharon Kelly, letting us know that we had come on her first night shift and that she had Pierce for the night. She told us of Dr Bloom's instructions, which we said we were aware of. Nurse Linda asked if I wanted to hold him. Of course. Only moments after setting him in my arms she walked back around to the side of the bed where her monitors are and said "oh what's his color doing?" to the RT standing next to me, still adjusting some cords. I replied "he is blue." They started bagging him there in my arms. I asked "Is he going to die right here in my arms?" They replied "no" and moved him to the bed to prepare him to be intubated. It took a very long hour and a half to intubate him (7 tries, and the neonatologist ended up having to do it) and get an IV in. We just sat there watching as they worked on our precious baby. Once he was stable, again on life support, we left with tear filled eyes and heavy hearts.
He has been doing well on the vent, but why wouldn't he? He can’t breathe on his own and that does it for him. Phil was able to hold him yesterday and I today. We love that sweet little boy so much and wish he could get better and come home, but just aren't sure that is going to be able to happen. With still no answers, and very few possible tests left to run, we are between a rock and a hard place.
One month old














































